How Do You Be So Brave?

Inside Passage, British Columbia
photo MDessein
These kids work hard every day just to stay alive.
To live, which I take for granted each day when I get up, dawdle, feed my cats, do some laundry, and never think “What do I have to do to stay alive today?”

These kids have medically complex issues that I cannot begin to explain, like having heart surgery for birth defects within 48 hours of being born then five more surgeries over the next three years, being paralyzed, having a brain injury, childhood onset of scoliosis; these few examples do not touch on the myriad of illnesses and challenges these children and their families face.

Yesterday, I was fortunate to attend the 11th Annual Stanley Stamm Camp Guild Fashion Show, a fundraiser for a summer camp founded by Dr. Stanley Stamm for kids ages 6 – 14 connected with Seattle Children’s Hospital who could not otherwise attend a summer camp due to all their medical care needs.

A Fashion Show, you ask? Yes, fifteen of these children came on stage modeling outfits donated by a large retailer. Many of them came on stage alone and did the stroll around it twice, some had help. Some in wheelchairs, some having their hand held, a few of them sashayed by themselves, a couple others had a volunteer or staff member walk beside them. Miranda, who was too shy to talk with one of the MC’s, did a lap around the stage by herself. Matthias waved, did a couple thumbs-up, and shook his booty in the course of his two laps. From his wheelchair with the huge wheels, Tucker had witty responses to questions. Serafina sang a song she wrote. And Joseph.

Joseph is about 12 years old, tall and slender, blind since birth, he walked with his taller-than-he-is walking stick in his right hand and a volunteer guiding him by holding his left elbow.

How many times did I get teary-eyed watching these children be so brave? Couldn’t tell you, as I lost count. Before each child came on stage, one of the MC’s, a longtime volunteer at Children’s, gave a brief synopsis of the child’s medical history and some of their favorite things. The things these children have done to get through another day, and then do it again the next day is remarkable to me.

Such young ones to work so hard to be alive.

Stamm Camp allows these kids to be kids: paddle-boats, pizza, tacos, fishing, swimming, horses, arts & crafts, archery, games, being outdoors, campfires, music… and freedom from many of their daily concerns. The Stamm Camp Guild is a special guild that raises money solely for the Dr. Stanley Stamm Camp. (If you are interested, donations are gratefully accepted: 206-987-2153.) In addition to the medical staff, there are 200+ volunteers who make this camp happen each year for these kids. Some of the volunteers are now adults who were in the camp in their youth.

Dr. Stanley Stamm photo by MYNorthwest

Who was Stanley Stamm? I’m glad you asked. Dr. Stamm founded the pediatric cardiology department at Children’s Hospital as well as pioneered treatments for kids with cystic fibrosis. When he died last year at age 93, the Seattle Times quoted his son-in-law who called Dr. Stamm, “the Mr. Rogers of pediatrics.”
Treat kids like people, not patients was one of his primary tenets.

After the Fashion Show and a few minutes of closing chat from the MC’s, there was the Fashion Models Finale – all the kids came on stage with some volunteers and helpers. We audience members cheered, clapped, hurrahed. All those on stage waved and clapped back at us.
Joseph was front and center. He handed his walking stick to his helper and raised both his arms in a great open V for victory and smiled.

Did I cry? You bet I did.

16 Comments

  • Meg Philp

    April 1, 2019 at 4:44 am Reply

    Uplifting to hear about their spirit! Thanks Mary, Got a little teary just reading this. M

    • Mary

      April 1, 2019 at 4:48 am Reply

      You’re welcome, Meg. They are impressive people, so touched my heart, too.

  • Susan Nelson Sivesind

    April 1, 2019 at 6:55 pm Reply

    Mary-
    It was lovely to meet you. Thank you so much for spending your Saturday with us at the Fashion Show!
    The magic of Stamm Camp is contagious.
    Thank you for sharing your experience.
    I will look forward to seeing you next year!
    ~Susan

    • Mary

      April 1, 2019 at 7:06 pm Reply

      Thank you, Susan. It was a remarkable experience for me, as you know. Thanks for reading.

  • Aletha Helm Riter

    April 2, 2019 at 7:57 pm Reply

    Yes….even the young have stories….this is so Beautiful…. I am glad that you have a chance to be a witness to this event. I am grateful that there are people out there who can and do help the ones you really need and benefit from it. Thank you for sharing your story….. Love Aletha

    • Mary

      April 2, 2019 at 8:32 pm Reply

      Indeed they do, Aletha. Love back to you~ Thanks for your always reading and being supportive.

  • Rose Johnson

    April 7, 2019 at 2:36 am Reply

    A beautiful story – thank you so much for sharing . Just reading the story makes a person re think their own personal lives. These kids are brave and continuing on each day.
    Rose Johnson

    • Mary

      April 7, 2019 at 5:59 pm Reply

      You are welcome, Rose, thank you as well. You certainly know about being brave. Best to you~

  • Robert Ray Godsey

    April 7, 2019 at 8:13 pm Reply

    A heart touching uplifting post Mary. Thank you for sharing this. You have a beautiful heart and a gift with words, you are beautiful from the inside out.
    May your humanity be contagious. I look forward to more of your observations and insights.
    Love always, Bobby Ray

    • Mary

      April 7, 2019 at 8:49 pm Reply

      Ah Monsieur, thank you for reading and your kind words. The journey continues, does it not? Love to you, Bobby Ray~

  • Greg D.

    April 7, 2019 at 10:06 pm Reply

    Thanks so much for sharing this story. And by the way, what boat were you on in the Inside Passage?

    • Mary

      April 8, 2019 at 9:42 pm Reply

      My privilege, Greg. I am grateful you read it, thanks. As to the Inside Passage, I was on the ms Amsterdam. Best to you~

  • Caroline Baertsch

    April 9, 2019 at 12:46 pm Reply

    Mary, what a touching tribute to those that participated in the fashion show. Once again you have hit the nail on the head with your words. You are a gift.

    • Mary

      April 9, 2019 at 4:50 pm Reply

      Thank you, Caroline. It sure was a touching event I had no concept of – the things I do not know. Merci beaucoup for your kind words and support~

  • Karen Foley

    April 9, 2019 at 6:16 pm Reply

    Touching story, Mary. Thanks for sharing your words with us. Be well.

    • Mary

      April 9, 2019 at 9:32 pm Reply

      Thank you, Karen. Best to you~

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